Date : Saturday 20th October - Sunday 21st October 2007

Venue : Renaissance Hotel, Warwick Road, Solihull, West Midlands

Agenda :

• "Galactosaemia 'A General Overview'"
  Chris Hendriksz
  Consultant in Clinical Inherited Metabolic Disorders
  Birmingham Children's Hospital
  
  
• "3D Photo Imaging"
  Dr Joanna Protheroe
  Geneticist
  
  
• "Fund Raising for the GSG - The launch of the 100 Club"
  Karen Smythe
  GSG Committee
  
  
• "AGM"
  
  
• "Fertility, Hormones & Egg Donation"
  Prof Anne Garden
  Gynaecologist
  Medical Education - Lancaster University
  Previously at Alder Hey Childrens Hospital
  
  
• "Dietetic Issues & The Galactosaemia Register"
  Anita MacDonald
  GSG Dietitian
  Head of Dietetic Services
  Birmingham Children's Hospital
  &
  Pat Portnoi
  GSG Food List Dietitian
  GSG Register
  
• "Results of the ChromaGen Lens Study"
  Chaaban Zeidan
  Consultant Optometrist
  Tamworth, Staffs
  
  
• "A Year in the Life of the GSG"
  Gary Rapps
  GSG General Secretary
  
  
• "Employment for People with Disabilities"
  Representative from Remploy
  
  
• "Through the eyes of the school SENCO (Special Educational Needs Co-ordinator)"
  Tracey House
  SENCO/Behaviour Support Teacher
  
  
  

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  Galactosaemia Support Group Conference 2005

  Date : Friday 14th October - Sunday 16th October 2005

  Venue : Renaissance Hotel, Warwick Road, Solihull, West Midlands

  Presentations :

  • "Galactosaemia from newborn to adult"
    
    Dr Philip Lee
    Consultant in Metabolic Medicine
    Great Ormond Street Hospital
    London
    
    
  • "New Foods available"
    
    Helena Rapps
    GSG Committee Member
    
    
  • "My Life with Galactosaemia"
    
    Briony Little
    Adult Galactosaemic
    
    
  • "European Galactosaemia Society's Presentation to the forthcoming
    Professionals Galactosaemia Conference"
    
    Jeroen van Kempen
    EGS Chairman
    
    
  • "Neurological Complications of Galactosaemia"
    
    Robert Surtees
    Professor of Paediatric Neurology
    Institute of Child Health
    London
    
    
  • "Dietetic Issues"
    
    Anita MacDonald, GSG Dietitian
    Consultant Dietitian in Inherited Metabolic Diseases
    Birmingham Children's Hospital
    &
    Pat Portnoi
    GSG Food List Dietitian
    
    
  • "Galactose Metabolism in Galactosaemia"
    
    Professor Peter Schadewaldt
    Biochemist
    Klinik fur Allgemeine Padiatrie
    Dusseldorf, Germany
    
    
  • "ChromaGen Lenses and Galactosaemia"
    
    Chaaban Zeidan
    Consultant Optometrist
    Tamworth, Staffs
    
    
  • "My Life With Galactosaemia"
  A.G.M. followed by general group discussions, including the future of the GSG lactose free food booklets, with Anita & Pat.
  
  

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  Galactosaemia Support Group Conference 2003

  Date: Friday 17th October - Sunday 19th October 2003

  Venue : The George Hotel, Lichfield, Staffs

  Presentations :

  • "Your Galactosaemia Child"
    
    Dr Andrew Morris
    Consultant Paediatrician
    Willink Biochemical Genetics Unit
    Royal Manchester Children's Hospital
    
    
  • "Testing for Galactosaemia, Gal-1-P and Galactitol"
    
    Ann Brown
    Principal Clinical Scientist
    Biochemical Genetics Unit
    Southmead Hospital Bristol
    
    
  • "Galactosaemia in Adults"
    
    Dr John Walter
    Consultant Paediatrician with Special Interest in Metabolic Disease
    Willink Biochemical Genetics Unit
    Royal Manchester Children's Hospital
    
    
  • "The Hormonal Issue, Treatment and Options for the Future"
    
    Dr Nick Shaw
    Consultant Paediatric Endocrinologist
    Birmingham Children's Hospital
    
    
  • "Update on Bone Density Study"
    
    Dr Melanie Kershaw
    Specialist Registrar in Paediatrics
    Birmingham Children's Hospital

  ---

  Galactosaemia Support Group Conference 2001

  Date :Sunday 14th October 2001

  Venue : Birmingham Children's Hospital

  Presentations :

  • "Calcium & Bone Mineral Densities"
    
    Dr Nick Shaw
    Consultant Paediatric Endocrinologist
    Birmingham Children's Hospital
    
    
  • "News from Europe"
    
    Jeroen van Kempen
    Chairman
    European Galactosaemia Society
    
    
  • "Living with a child/adult that feels "different"
    
    Sally Ferris
    Clinical Psychologist
    
    
  • "Report from American conference in Atlanta"
    
    Tom Sagal
    GSG Committee Member
    
    
  • "Cheese! Yes Cheese! But which cheese?"
    
    Dr Richard Robinson
    Dept. of Food Science
    University of Reading
    
    
  • "Dietetic Dilemmas"
    
    Anita MacDonald - GSG Dietitian
    
    Pat Portnoi - GSG Food List Dietitian
    
    
  • "Children's Presentations"
    
    Michael Bevington
    Galactosaemic