GSG UK

Galactosaemia literally means ‘galactose in the blood’. Galactose is a sugar which mainly comes from lactose, the sugar found in milks. The Galactosaemia Support Group brings families with galactosaemic children and adult galactosaemics into contact with each other and offers support where most needed. Through the group, the families are able to share experiences, help each other with problems and exchange information and ideas.


Galactosaemia literally means ‘galactose in the blood’. Galactose is a sugar which mainly comes from lactose, the sugar found in milks. The Galactosaemia Support Group brings families with galactosaemic children and adult galactosaemics into contact with each other and offers support where most needed. Through the group, the families are able to share experiences, help each other with problems and exchange information and ideas.


What We Do

1. Donation

The work the GSG does can only be done with funding. A donation, however small is a great help to the group. Without funding there is no GSG

 

2. Research

The GSG uses the funding to produce information booklets, test new foods, organise events and do research into galactosaemia and its associated problems.

  Red circle with arrows pointing out  

4. Support

The GSG uses the information to support its members through the booklets we produce, newsletters, updates and the events we organise. Both the conference and the family weekends away give members the chance to meet and learn from others living with galactosaemia.

 

3. Teaching

The research is shared with our members and the medical professionals who use it to teach new parents about living with a galactosaemic family member. The GSG uses funding to organise workshops which are a fun and interactive way of learning for both parents and children alike.

A continuous circle. Each part needs the others for it to all work.

Donation

The work the GSG does can only be done with funding. A donation, however small is a great help to the group. Without funding there is no GSG

Research

The GSG uses the funding to produce information booklets, test new foods, organise events and do research into galactosaemia and its associated problems.

Teaching

The research is shared with our members and the medical professionals who use it to teach new parents about living with a galactosaemic family member. The GSG uses funding to organise workshops which are a fun and interactive way of learning for both parents and children alike.

Support

The GSG uses the information to support its members through the booklets we produce, newsletters, updates and the events we organise. Both the conference and the family weekends away give members the chance to meet and learn from others living with galactosaemia.

Newly Diagnosed

Family with new born baby in arms

As newly diagnosed parents, you have lots of questions. The GSG is here to give support and answer all the questions you may have.
Find out more about membership
by clicking here.

Professionals

Professional Doctor sat at desk

As a professional health care worker, you may be working with sufferers of galactosaemia.
We have created a professional section to help you find what you may need more quickly and easily.

Schools

School classroom with teacher and children with hands up in the air

Need some resources to give to your children’s school?
If it is teachers, assistant teachers, head teachers or even the dinner ladies and catering staff you will find helpful school information here.